EDS Awareness 2022: Patch Kit and the Solidarity of Suffering

I had a different piece of writing planned for Ehlers-Danlos Syndrome Awareness Month this year, but reeling from a mass shooting (and the gut-wrenching awareness that anyone reading this will have to wonder even which one I’m referring to) has turned my head around and made me reflect on the nature of suffering as a societal phenomenon. A physical disability like EDS is so often a source of isolation (among its many challenges) and yet as I watch so many people trying to reconcile their grieving, I think about the capacity we have to connect in the face of suffering.

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