Stop the Bleeding: What Disability Has Taught Me About Treating the Symptom (Societally, Physically, or Otherwise)

Right now a lot of people I know are navigating the cognitive dissonance of joy and trepidation. They are elated by the outcome of the election, as many millions are (and as, turning the tables from 2016, many millions aren’t). At the same time it’s harshing their mellow to realize that there will be backlash and that core issues that divide us will remain as roadblocks for at least the foreseeable future, regardless of whether a single polarizing human is amplifying them. Here’s what life with EDS has taught me about how to view this.

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Top 10 Favorite Tribute Songs for Musicians/Friends

The recent release of my Love Right project has made me reflect on the many others who have used music to paid tribute to those who have departed, whether loved ones or heroes and whether musicians or not. This list centers on those in the middle of this Venn diagram – musicians paying tribute to fellow musicians who were also their friends, and doing so with music created for that purpose.

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Bravo to Phil Schaap, NEA Jazz Master

I’m a couple days late here, but bravo to the three brilliant and deserving musicians in the newest class of NEA Jazz Masters. I particularly want to shout out the 4th member of that cohort, the historian/producer/archivist/DJ Phil Schaap. He’s a mysteriously polarizing figure (though literally the only criticism I’ve ever heard is that he talks too much, which is maybe true but the absurdity of ME criticizing someone for that is more than my brain can handle) but my goodness has this man spent his life working to elevate the visibility and understanding of the art form he loves from the bottom of his heart and the depths of his utterly remarkable mind.

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Top 10 Favorite Toots and the Maytals Tracks

Frederick “Toots” Hibbert has been my favorite reggae singer (and indeed one of my favorite soul singers, period) since I first heard him when I was around 15. Because 2020 is relentless, we now only have his recordings (including his latest studio album, released soon before he suddenly fell ill), but my goodness are there gems in his discography.

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Top 10 Favorite Sonny Rollins Tracks

What a gift that a soul as wise and deep and creative as Sonny Rollins has been around for 90 years as of today and is still with us, playing retirement notwithstanding. Even if he never played a note, I would be moved by his approach to art and his wise words about life. But fortunately for us he did play notes, sometimes lots of them. I’m reticent to describe his style in a setting like this, but his mixture of stunning fluency (on the horn and with harmonic structures) and relentless pursuit of idea-development is incredibly inspiring, and if you add to that his robust sound and the extreme clarity of his articulation, the results are incredible. And I mean that literally – I listen to Newk sometimes and think “how is this even possible for a human to come up with this?” I can confidently say (and, mind you, I would cite John Coltrane as my favorite musician, period) that no greater saxophonist has ever lived than Walter Theodore Rollins.

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EDS Awareness Month 2020: Finding Your Inner Toilet Paper (reassurance when things might not be okay)

I’ll just say it: my mother was a toilet paper hoarder. It’s more interesting and instructive than that, though, and I as I’ve reflected on it, I think it applies to other facets of life and coping with uncertainty and adversity, particularly at times of disruption and upheaval. For this year’s Ehlers-Danlos Syndrome Awareness Month essay, I’d like to examine that (though, sorry to disappoint you, there will be nothing particularly scatological here).

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Top 10 Favorite Tracks Featuring Jimmy Cobb

Ironically, I began this list a few days ago as part of a determination to recognize some of my favorite living musicians while they’re still around. Obviously not fast enough in this case, as yesterday was time to say goodbye to maestro Cobb after 91 profoundly productive years. If all he’d ever done was play with Miles Davis for a few years, his place in the history books would be secure, but his pocket was more versatile than that, while at the same time being so swinging that it helped define a musical generation (when I was in my early 20s, I recall observing that there were young drummers on the scene in NY who sounded more like Jimmy Cobb than Jimmy Cobb did). Without any further ado, here is a sampling of some of my favorite Jimmy Cobb moments among many (and with apologies for all I omitted), presented in chronological order.

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Reaffirming Purpose Amidst the Chaos

I present you a tale of affirming and reconnecting with my sense of purpose amidst the anxiety and disorientation of all that’s going on. If you’re needing something like that (or at least a ray of hope that it could happen) then I invite you to read on. I considered keeping this to myself but figured there’s likely someone here who needs to hear it.

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